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Monday, May 6, 2013

Personal Experience with Birth Defects


February 7, 2013 was a day that changed my life forever.  My wife had a weekly prenatal visit scheduled that morning. About three in the morning she began having labor pains that continued for the next few hours.  As the pain increased and time between contractions decreased, we made a decision to call the doctor.  Within an hour we arrived at St. Luke’s Labor and Delivery and by eight the nurse informed us that she was definitely in labor and we would be having a baby today.  Around noon the doctor came in and broke her water and started getting us prepared. As the day wore on, she was finally ready to push. After two hours of pushing, she delivered a baby boy at 7:10pm. There were no sounds as he arrived and the cord was wrapped around his neck, my wife could see the look of panic on my face. Within seconds the doctor spun his little body like a football and lifted him up for me to cut the cord. Words cannot describe the emotion I felt, it seemed as if God reached down and breathed life into him. Troy Thomas entered the world weighing 7 pounds 10 ounces and was 21 inches long.
When I opened my hand to hold my new born son on his birthday I was speechless as he squirmed in my arms. My wife and I, with God’s blessing had created this amazing child. Wrapped in a warm blanket he was passed around to family members to adore. We were all oblivious to the fact that he had a birth defect, a crooked little foot. The next day nurses and doctors began explaining that he had a club foot. My heart nearly stopped beating and fear swept over me as they explained the cost, casts, braces and possible surgery needed to give him a chance to walk. My son who was born in America, in a sterile hospital with the best medical care available, and his mom had early prenatal care, was born with a birth defect. We couldn’t help but wonder if it was something we did wrong as parents. Did my wife eat the wrong food, take the wrong medication, was it heredity? Hundreds of questions filled my mind.
It was three weeks until we were able to meet with the orthopedic specialist to evaluate him.  He said it looked really good and we were lucky it was only one foot. The plan was to cast it for a series of five weeks, each week rotating the foot position. After five casts we would reevaluate and see if he needed to have surgery. I left home with a baby with a crooked foot and hundreds of questions. I returned with my child in a cast up to his hip and hope for the future that this birth defect could be repaired and he will have full function in both his feet. He will run and jump and play like other kids.
The type of clubfoot he has is idiopathic or positional. Basically his mother was so small and he was too crowded and did not have room to move about. The clubfoot was a result of the position his foot was stuck in during the later part of the pregnancy that inhibited the foot from developing properly. There was nothing we could have done differently and we are very fortunate that with advanced technology and proper medical care he can completely recover.  
As of today we have completed the series of casts and rather than surgery the doctor felt he could use a mechanical brace. He is required to wear the brace 23 hours a day for the first three months. After that, if everything goes as planned, he will only have to wear the brace at night until he is four years old. He was fitted with two sandal type shoes that position on a bar that is shoulder width. The bar allows the doctor to manipulate the rotation of the foot. The next few years will be filled with doctor appointments, medical bills and shoe fittings but in the end when my son takes his first step the struggle will all be worthwhile. 

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